[Warning: Don't do a Google image search of hydrops fetalis if you don't know what it is because it can be/is incredibly upsetting. Here's the definition: An abnormal collection of fluid in at least two different fetal organ spaces. Sam's was caused by severe anemia from the parvovirus B19 virus (the virus that causes Fifth disease) which is VERY common in daycares, where I picked it up when I was pregnant.]
Hello, ladies! I haven't been here in forever! I'm looking for any moms of little ones who had hydrops fetalis. My daughter was diagnosed at our level 2 ultrasound in September 2014 and was born in January 2015. The only lasting sign that she was ever sick is extra skin around her abdomen. We're still waiting to see if her brain development was affected. So far she's hitting most of her developmental milestones, except for language.
Our pediatrician keeps telling us that Sam will grow into her extra skin, but admits that she is the first baby she's treated who has survived hydrops. Sam's a year now and rather than growing into her extra skin, it appears that the extra skin is growing in proportion with her. It's not a concern now, but I'm envisioning her teenage years and possible bullying because of her different body shape. Any moms out there with words of wisdom?